There are a lot of challenges out there around the internet. Squats, Ice Buckets, Planking and some really scary ones that I don’t even want to get into! But one of the first that I can remember was the 30 Day Song Challenge. There are various iterations of this but I think I’ve chosen one that should give us some variation and hopefully keep people guessing! Yesterday, I added an extra in (as May has 31 days). But this is the version that I’m going to be using this year.
This means that Day 1 is today (2 May, just to confuse you all) and so I need a song with a colour in the title. The team colour for the Orange Apples is (not surprisingly) orange, because that’s the colour used by the National Ankylosing Spondylitis Society. But I didn’t want to be so obvious so today I’ve opted for The Presidents of the United States of America and Peaches…
Continue reading “That’s not a challenge! (WYASO Day 2)”
And here we are, the final day of #keepinitreal week. Andy and I have arrived in Chorley ready for my cousin’s wedding party. It was a beautiful trip down as the sun shone all the way from Newcastle, right through Cumbria and down until we arrived. Then the heavens opened and I was reminded that I was in the North West!
But tonight is when Facebook and my friends get to see one of the rare times that we go out and have fun. I can only manage about an hour or so before I end up stiff and in pain. So we have to stop every time we head down, Tebay is a nice place to drop into on our way and that’s where today’s photo was taken.
I’ve taken my tablets, done my exercises, rested and it’s not injection week. I’m as ready as I ever will be to have fun, let my hair down, and celebrate with my amazing cousin! I hope that you’re all going to have a fun, relaxing and great bank holiday weekend too. Continue reading “#keepinitreal – Day 7”
I’m functional again! Just another 12 days until I go through it again… But until then, I’m off to work. Because of the way I’ve felt, I’ve had a couple of days off my exercises and I’m now feeling rather stiff (the result of not doing my physio). I’ve also spent a lot of time over the last couple of days resting, lying in bed listening to Big Finish Dr Who audio plays and trying not to make my head or stomach work. So I should be full of energy. But the reason that I’ve been resting is because I’ve … Continue reading #keepinitreal – Day 3
Normally on day 2 of my injection I’ve got a really busy day planned at work. So I drag myself in, do as much as I can, and then leave early. This week I planned a quiet week so that I could update a load of stuff and just try to catch up with my admin. Yesterday (like every other post-injection day) was spent moving from the sofa to bed for a few hours and back again. This helps with the headache and stops the nausea from becoming actual sickness, but isn’t great from an AS viewpoint. It means that … Continue reading #keepinitreal – Day 2
Day 1 of my #keepinitreal week, I took my Humira injection last night so it’s always the day when I’m feeling most sorry for myself. My stomach is churning and I feel nauseated. My head is throbbing and there’s the familiar stabbing pain behind my right eye running back to the crown of my head. You’ve probably noticed the headphones. I’m not listening to anything, it’s to reduce the noise around me because my hearing is really sensitive on hangover days. So, if I ask to excuse myself because it’s my injection weekend, this is the reason why. It’s this injection that … Continue reading #keepinitreal – Day 1
One of my Facebook friends (who lives with ME/CFS and I have so much respect for) posted this yesterday and it inspired me to get back to the keyboard. Believe it or not, the biggest issue I have with being a … Continue reading #keepinitreal
I’ve seen this picture by Pawel Kuczynski on Facebook a few times recently, he’s an amazing artist and I really love the concepts that he covers. It’s part of a series of images drawn as a satire on the modern world. Satire’s great, and to be honest it’s one of the things that has helped me through the complete shit-storm that has been 2016.
But satire is a form of comedy, it’s supposed to be a mirror on the world that makes you think. And I think that this does. But do you know what I don’t think Mr Kuczynski was trying to do was to create art that people would use to make themselves seem or feel better than others. I have seen people posting this because they’re not one of the “sheeple” that have joined in with the worldwide phenomenon that has been Pokemon Go!, the people who think that they’re somehow better than others because they’re not following the herd. Continue reading “Let It (Pokemon) Go!”
There was a meme that did the rounds for Invisible Illness Week. I’ve decided to resurrect it for WYASO month. (I’ve amended Q17 as we don’t have medical commercials in the UK.)
1. The illness I live with is: Ankylosing Spondylitis. But like most people with auto immune conditions, it’s not alone. I’ve also had Reynaud’s for about 20 years as well as mild IBS (inflammatory not irritable).
2. I was diagnosed with it in the year: 2014.
3. But I had symptoms since: I was 17 (that’s 18 years for anyone who wants to do the sums…)
4. The biggest adjustment I’ve had to make is: Admitting my limits and living within them. There were LARP events that I went to in my younger days where I actually overdosed on painkillers (as a word of advice, 18 dihydrocodeine in the space of 8 hours is a bad idea boys and girls…)
5. Most people assume: That I have a back condition, not realising that it’s actually an immune system issue that affects my back.
6. The hardest part about mornings are: Everything until I’ve had the chance to get moving!
7. My favorite medical TV show is: Doctor Who. (What!? He’s The Doctor, the definitive article, there’s only one of him!) Continue reading “30 Things About My Invisible Illness You May Not Know”