That’s not a challenge! (WYASO Day 2)

30 Day Song ChallengeThere are a lot of challenges out there around the internet. Squats, Ice Buckets, Planking and some really scary ones that I don’t even want to get into! But one of the first that I can remember was the 30 Day Song Challenge. There are various iterations of this but I think I’ve chosen one that should give us some variation and hopefully keep people guessing! Yesterday, I added an extra in (as May has 31 days). But this is the version that I’m going to be using this year.

This means that Day 1 is today (2 May, just to confuse you all) and so I need a song with a colour in the title. The team colour for the Orange Apples is (not surprisingly) orange, because that’s the colour used by the National Ankylosing Spondylitis Society. But I didn’t want to be so obvious so today I’ve opted for The Presidents of the United States of America and Peaches…

Continue reading “That’s not a challenge! (WYASO Day 2)”

Walk Your AS Off 2016 – My Total

Phew!

I was worried for a while, I wasn’t sure if I’d make my target. I’d set myself a challenge of 300,000 steps (10,000/day with a little leeway for my recovery days after my Humira injection because of the Humira Hangover). I know that there are conversion charts for other activities but I try to get actual steps.

I know that it doesn’t sound like a lot, but I can assure you that (especially early in the morning) it’s not as easy as it sounds. But the NHS has the 10,000 Step Challenge so I thought that it was a good target to set. So, how did I do? I hear you cry (very quietly of course).

Continue reading “Walk Your AS Off 2016 – My Total”

The Good. The Bad. And The Meh.

As most people with a chronic condition will tell you – there are good days, bad days, and days where things are manageable. In fact, the fluctuations in the day can be huge too. First thing in the morning is usually one of the worst times for people with AS, and I’m a stereotype on that front. NASS realised this (what a surprise!), but they also realised that it’s not always easy to explain to someone how you’re feeling. Especially for us Brits. The correct response to the question “How are you?” is “Fine thanks.” So they’ve made a set … Continue reading The Good. The Bad. And The Meh.

Walk Your AS Off 2016 and NASS at 40

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I didn’t want to bleat on about this too early as people might get bored if I bleated on about it a lot. But it’s less than a month now until Walk Your AS Off 2016.

For those of you who don’t know what this is, it’s a Worldwide awareness raising event every year throughout May (World Ankylosing Spondylitis Awareness month) to raise awareness of Ankylosing Spondylitis. And this year is its first time as a fully registered charity in its own right. If you’d like to join in then all you need to do is register on the website and record how many steps you take each day. Last year we were able to walk all the way to Mars!

There are lots of teams around the world and there’s a bit of friendly competition. But the important thing is raising awareness. Fundraising is also welcomed (obviously), and I’m a member of the Orange Apples who raise money for NASS (National Ankylosing Spondylitis Society), the UK AS charity. Continue reading “Walk Your AS Off 2016 and NASS at 40”

Walk the Dinosaur

Today is May the 4th, and it’s an easy excuse to sit in front of the TV and veg out in front of a back to back Star Wars marathon. (I know it’s not just me that thought that!)

But that’s not a good idea if you have AS. Remember, your body is building more spine to replace the bits that your immune system has been attacking (you know, because it was bored, confused, or it just decided to throw a hissy fit).

Sitting down and relaxing is nice, we all like to do it. But it’s not good for you. When you sit your posture changes, and your body builds the spine in a shape that fits that. This is one of the causes of kyphosis. I did this regularly before my diagnosis and – if I’m completely honest – I still do now. Continue reading “Walk the Dinosaur”