The A-Team (WYASO Day 4)

feature_NASSAward_2016I talk a lot about getting the right team to support you. I’ve been seriously lucky since my diagnosis as my local NHS put me with a fantastic rheumatologist, who in turn arranged for me to see an amazing Specialist Nurse. (She’s so amazing that she even won a national award!)

I was referred to hydrotherapy (the best treatment I’ve found to date – if it’s available then I highly recommend it) and physiotherapy. My GP listens to me and takes on board my opinions, providing options and keeping me involved in everything including medication.

I know that I’m lucky, and I really appreciate everything that my care team does for me. I also know that not everyone is so lucky. If you find that you aren’t getting the support you need, tell them! Continue reading “The A-Team (WYASO Day 4)”


Good Christian Values 

The other day I wrote about the upcoming snap election. I’m now going to start nailing my colours to the mast. Your vote is your own personal choice, and what you do in the polling booth is between you and the ballot paper.

conservative-party-hard workingI would however like you to look at the party that’s currently in government. The Conservative Party touts itself as the party that represents “traditional British values”. They claim to be the party that represents the “hard working” families. They believe that the government interferes with business and should back off. They talk about balancing the budget and how much the Labour party screw the economy.

So far, so good. Do you know what? If I didn’t watch their actions, but just listened to their words, I might vote for them myself. But their actions belie the words. There’s a reason why the demographic for the Conservative Party is generally older people. I discussed a bit about this last year when I wrote about the generation gap in the referendum. As a generalisation, the Baby Boomer generation is (in my opinion) the most selfish and entitled currently alive. Continue reading “Good Christian Values “

10 Days To Go


In just 10 days the UK goes to the polls to decide whether to stay in the EU or whether to leave. There’s a lot of noise from both sides, but there are a couple of arguments that directly affect the scope of this blog so I wanted to address them.

The first is the £350 million argument. The Leave campaign have said repeatedly that the UK pays £350 million into the EU every week, and that it could be spent on the NHS. Even if the number had been proved to be true (and it hasn’t), do you honestly believe that the government would spend all this on the NHS? Looking from the outside I get the impression that this government, like so many before it, would like to see a much more private health sector.

Continue reading “10 Days To Go”

It’s all moan, moan, moan.

Man walking in the rainAs you might be able to tell, this blog is mostly a stream-of-consciousness. I have an idea about what I want to talk about and I just type. I scan over it after I’ve finished, but mostly as a quick sense and grammar check. I also try to make sure that I’m writing in my own voice rather than in an artificial, formulaic style.

I haven’t re-read my posts, and I don’t plan to for a while. But thinking about the topics that I’ve covered and the bits that I can remember typing, I get the impression that it might come across as whingy, whiny, or moany. Obviously we Brits have raised the Generic Moan into an art form. Just ask any of us how the weather is!

But I started this blog to try to put across how living with AS feels. Hoping to help someone who has just been diagnosed, or to our friends, family, and supporters. Hopefully some of the people who’ve visited have found it useful or informative. But I don’t want people to think that it will definitely ruin your life. It only does that if you let it. I’m going to do a separate post on how it feels emotionally at some point, but I can tell you that it does.

Today I want to recognise a couple of things that I like about my AS. This is a happy post so I think we need a happy song:

Right, now on to the benefits: Continue reading “It’s all moan, moan, moan.”